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The troubled dream of genetic medicine：ethnicity and innovation in Tay-Sachs, cystic fibrosis, and sickle cell disease

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Bibliographic Details
Main Authors: Wailoo Keith
Group Author: Pemberton Stephen Gregory
Published: Johns Hopkins University Press,
Publisher Address: Baltimore
Publication Dates: 2006.
Literature type: Book
Language: English
Subjects:
Genetic disorders > Research > Moral and ethical aspects
Ethnic groups > Diseases
Tay-Sachs disease > Genetic aspects
Cystic fibrosis > Genetic aspects
Sickle cell anemia > Genetic aspects
Genetic Diseases, Inborn > ethnology
Genetic Diseases, Inborn > prevention & control
Anemia, Sickle Cell
Cystic Fibrosis
Health services accessibility
Tay-Sachs Disease
Maladies héréditaires > Recherche > Aspect moral
Groupes ethniques > Maladies
Tay-Sachs, Maladie de > Aspect génétique
Mucoviscidose > Aspect génétique
Drépanocytose > Aspect génétique
Carrier Form: viii, 249 p.: ; 21 cm.
ISBN: 0801883253 (hard cover : alk. paper)
9780801883255 (hard cover : alk. paper)
0801883261 (pbk. : alk. paper)
9780801883262 (pbk. : alk. paper)
Index Number: R596
CLC: R596
Call Number: R596/W136
Contents: Includes bibliographical references (p. [175]-222) and index.
Ethnic symbols in conflicted times -- Eradicating a "Jewish gene": promises and pitfalls in the fight against Tay-Sachs disease -- Risky business in white America: gene therapy and other ventures in the treatment of cystic fibrosis -- A perilous lottery for the Black family: sickle cells, social justice, and the new therapeutic gamble -- Dreams amid diversity.

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